First I need to say a HUGE thank you, to ALL of you who shared my last blog about my son and my desperate roar for help https://majasf.wordpress.com/2013/04/03/my-roar-for-help-to-my-son/ Many Rt’s on Twitter, shares on Facebook, many emails, many comments and so on. It all means so very much to me and I am humbled by your kindness. Some of you gave me advice on who to try to contact and that has been done, unfortunately there are still not the right expert help out there, but I am still on the mission to help my son and I know some day, I will succeed. BUT since many wrote about gluten allergy, intolerance’s etc. I’ve decided to put my son on a gluten free and diary free diet (I want to cut the sugar as much as possible but I refuse to use sweeteners, I am not a fan of those and no one knows what the outcome of these are, yet).
I started last Saturday and it started out amazingly and Tobias truly surprised me and ate the veggies I made (I have tried this kind of diet on him before, and it was not a success but I think it was me not being ‘strong’ enough and did not know enough about what foods to give him).
I must say, I was not a fan of being in the kitchen before and this new life style does not make life any easier for me, it takes a long time, a lot of hours in the kitchen and sometimes the result is horrible and sometimes it taste fantastic.
(I have said it before: if I ever find love again, he has to be able to cook and wants to cook. Okay we can maybe cook together, then as well) but until then, I keep fighting in the kitchen and I keep searching for that expert help.
I am still pretty convinced that the answer of Tobias’ mystery illness lies in his spine or something with vitamins of some kind, he was lacking great amount of folic acid in the spinal fluids (he does not anymore, after he started folic acid pills, but what if the fluids is not being transported correctly in his spine?) – oh well, I can keep guessing and I can keep to try to push the Danish doctors for doing some of the tests I want them to do. So far, not succeeding.
This was just a little update and I wish I could share more amazing news but some day, I promise!
Again thank you all so very much! You all have a special place in my heart and I am forever grateful, even if I never find the correct answer.